Journal & Article

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I/F
# Journal I/F

AMERICAN JOURNAL OF BIOETHICS

ELSIcon2024: Reimagining the Benefits of Genomic Sciences. David's Sling: Bioethics Empiricism as Big Tech Goliaths Enter Genomics. Public Value and Industry Partnerships in Data-Intensive Health Innovation. Academic-Industry Collaborations and Genomic Databases: a "Tyranny of the Minority"? The Power of Meso-Level Levers for Enhancing Genomics Research Partnerships. When 'More Isn't More': The Normative and Practical Case for Improving Genetic Data Infrastructure. The European Health Data Space as a Compass for Academic/Industry Collaborations. Impact of the U.S. Department of Justice Data Security Program on Genomic Data Sharing. The Value of Genomic Information: Quality Over Quantity. Governing Academic-Industry Genomic Partnerships for the Public Interest in a Corporatized Academy. The Challenges of Reproductive Autonomy in an Unjust System. Reproductive Autonomy in an Expanding Genomic Landscape: For Whom, and Under What Context? Reframing the Ethics of Prenatal Testing: From Autonomy to Social and Societal Implications. Expanded Prenatal Genomic Testing: Reproductive Autonomy Can Go in More than One Way. Reproductive Autonomy in Prenatal Genomics: embedding Legal Safeguards for Life-Affirming Choices and the Value of Prenatal Life. Reproductive Autonomy in Light of Expanded Prenatal Genomic Testing: the Use of Polygenic Risk Score for Embryo Selection. The Stories We Tell About Genetics: Freedom, Disability, and Determinism. Beyond Roadmaps: Contractual Governance in Genomic Diagnosis. Genomic Medicine and Equity in Relation to Health Systems. Expanding Access to Genomic Sequencing in the Neonatal Intensive Care Unit: A Roadmap to Discharge and Beyond. Genetic Testing in Autism Spectrum Disorder: Searching for a Ticket or Roadmap. Ticket, Roadmap, or Road Not Taken? Digital Life Models and the Genomic Knowledge Paradox: A Proposal for AI-Assisted Reflection in Genetic Decision-Making. We Agree-Centering Parents' Reasons is Dangerous. Response to Commentaries on "Defining Death: towards a Biological and Ethical Synthesis". Substituted Judgment and Uncomfortable Truths. Parental Reasons, Ethical Responses: Mapping the Debate Over Parental Reasons in Pediatric Bioethics. How Could Parents' Reasons Shift a Refusal of Treatment into the Zone of Parental Discretion? The Transformative Power of Reasons Relitigates Concerns about Non-Facilitated Healthcare Ethics Consultation. Of Course Reasons Matter. The Question is How. But What's the Real Reason? Internalism and Navigating Parental Commitments. Parents' Reasons Should Not Move the Boundaries of the Zone of Parental Discretion. Reasons Don't Move Goalposts. The Burden of Articulation: Why Overvaluing Parents' Reasons May Disadvantage Those We Seek to Protect. The Influence of Emerging Autonomy on the Reasonableness of Parental Reasons. Respect Relationships, Remember Roles, and Realize Reasons: Ethics Tasks Relevant to Intervention Principles. Yes, Parental Reasons Matter: Value-Laden Reactions Should Not Undermine the Utility of Knowing "Why". Weighing Parents' Reasons Regarding the Use of GLP-1 Medications in Pediatric Care. The Case for Structural Ethics: Why Pediatric Bioethics Must Think Bigger. Respect Without Romanticizing: Cultural Values, Parental Reasons, and Unproven Pediatric Treatments in East Asia. Relational Reasons and Moral Worth: A Southeast Asian Perspective on Parental Justification in Pediatric Ethics. Do Clinicians Need to Understand?: Rethinking the Role of Comprehension and Secular Bias on Religious Reasons. Reintroducing Ethical Gatekeeping? The Risk of Centering Parental Reasons. Parental Reasons Matter. Healthcare Professionals Must Still Do What Is Best for the Child. The Philosophical Fiction of Substituted Judgment. Moral Pluralism and the Limits of Authenticity. Substituted Interests, Authenticity, and Practically Wise Best Judgments. Respect, Authenticity and Substituted Judgment. Even Paradigm Cases Can be Non-Paradigmatic. Advance Directives: Ten Strategies to Assure Value Congruent Treatment.